starting with Chloe

Our Story
Parenting a medically fragile child is a 24/7 job. Every day is never-ending, with unique nurse level care needs, doctor and therapy appointments, paperwork and charting for insurance, state and federal support and caregiving team , prescription management, storing supplies and maintaining specialized equipment, increased transportation needs all on top of the day to day of family life, meals, laundry, marriage, brother and sisters, friends and family


Chloe's Story
Chloe was a full term healthy baby. Her double- dimple smile and welcoming "hi!" were her trademarks at 6 months! At 7 months, she was shaken and brought to the ER nearly dead. After three weeks in NICU, she was alive but changed. It had changed almost every part of her body-movement, spinal curvature, vision, hearing, swallowing, speaking, even breathing is affected. Read more…..
In spite of all of that, she is the same double-dimpled cheerful people-loving child. She loves her platform swing, riding in the wheelchair van, and camping outdoors, especially by the campfire. She lights up with music, outdoor walks, singing birds, stories and gentle giggly roughhousing.
Chloe's Hopes
Chloe hopes to be able to communicate more easily and be loved and accepted.
Chloe's Dreams
Chloe wants a future where she has lots of wonderful life experiences in spite of her limitations.
Making it Happen
Chloe's family needs daily and monthly transportation, solid 24 hour trained caregiving team, respite and breathing space to live their lives, too.
How can we help Chloe and her family


Family Support Services
Extended Respite time for Chloe's family
Counseling for Chloe's siblings
Replacing the 17 year old wheelchair van
Expenses not covered by Medicaid
Therapies that may be helpful that are not yet approved by insurance.
Additional Caregiver Support
Extra pay for specialized caregivers, especially with AAC abilities
Training for all the therapies recommended so they can be done regularly
Therapeutic activities like swimming and music
Additional pay for overnight and respite care


Life Experiences and Fun
Camping
Visit natural outdoor wonders
Participate in play dates with different kids
Go to live music events and meet new people
Participate in Community Activities

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